Patients & Families

PPI meeting Autumn 2022- Get Involved

PPI gives YOU a bigger say in the research and research methods that matter to YOU!

We are aiming to have a first PREDICT-Meso PPI meeting in the next few months to discuss:
•    the type of activities you would like to be involved in
•    whether you would like to take part in face to face or virtually

If you are interested in being involved in this initial meeting, click the button below and complete your contact information and preferred meeting format.

Mesothelioma is a rare cancer that most commonly occurs in the lining of the lung (pleura).  It can also occur in the lining of the abdomen (peritoneum) and the lining of the heart (pericardium). The main symptoms are shortness of breath, chest pain, cough and tiredness.  Being exposed to asbestos is a major contributing factor.

 

For information on mesothelioma please check out these informative websites:

taking part in research

As mesothelioma is a rare cancer, it is not as understood as some other more commons cancers. Taking part in mesothelioma research can change this – and change lives.

What can I expect?

This will vary from study to study but may include (but are not be limited to): sample collection, questionnaires, additional scans, new medicines or other treatments.

Every mesothelioma project is different and comes with its own Participant Information Sheet (PIS) that will inform you of the projects aims and what will happen to you, your samples and your data, if you decide to take part.

Research projects generally require your consent. Research participation is voluntary, and you should never be coerced into taking part in a study. Your healthcare team will be available to discuss study participation, benefits and risk with you.

Even after you consent to a study, you can remove yourself (and your information) at any time so remember if you decide to take part in a study, you are always able to change your mind.

What is mesothelioma research?

Research is defined as ‘the systematic investigation into and study of materials and sources in order to establish facts and reach new conclusions.

Mesothelioma research allows us to develop new tests and new treatments with the hope that we can detect mesothelioma sooner, and treat it more effectively, prolonging life and improving symptoms.

Mesothelioma research cannot exist without research participants; those individuals with mesothelioma (or suspected mesothelioma) that give up their time and allow researchers to take additional samples, ask additional questions and offer new treatments while measuring their effects. Research participants are the real heroes in research.

 

Why take part in research?

Taking part in drug trials may directly benefit you and your health as a mesothelioma patient. However, not all trial medicines will work for everyone, and not all research investigates treatments.

For many research participants, the main reason for taking part in research is to either:

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find out more about their condition - taking part in research often involves closer monitoring and additional tests, or

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to contribute to the understanding on the subject, adding to existing knowledge on the condition that could help future patients and their families

What mesothelioma research I can get involved in?

Check out the Mesothelioma UK clinical trials app for up-to-date information on UK-wide clinical trials and how you can get involved

PREDICT-Meso clinical study- Meso-ORIGINS

PREDICT-Meso leads a clinical study called Meso-ORIGINS. This study is funded by Cancer Research UK (CRUK) and they have a great lay summary of the study in the ‘find a trial’ section of their website. Click the button below to read this summary and find out which hospitals are taking part

Patient and public involvement (PPI)

Patient and Public Involvement (PPI) is the process of actively working with patients, carers, families, and members of the public to design, manage and carry out research that is important to them.

It shifts research from the traditional view of ‘research being carried out ON those it impacts’ to the more helpful view of ‘research being carried out WITH and FOR those it impacts’.

PPI gives patients, carers, family members and the public a bigger say in the research and research methods that matter to them, ultimately to the benefit of everyone.
Most research studies have a PPI element in them, with individuals giving feedback on research questions and methods.

If you are interested in finding out more, or being involved in PPI in mesothelioma research, please contact PREDICT-Meso@glasgow.ac.uk to see how you can get involved.

PPI meeting Autumn 2022- Get Involved

PPI gives YOU a bigger say in the research and research methods that matter to YOU!

We are aiming to have a first PREDICT-Meso PPI meeting in the next few months to discuss:
•    the type of activities you would like to be involved in
•    whether you would like to take part in face to face or virtually

If you are interested in being involved in this initial meeting, click the button below and complete your contact information and preferred meeting format.